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This is Parkinson’s was born from my personal journey when I was diagnosed in 2014. I realized there was a profound need for a space that truly resonates with those living with this illness—a space created by and for us. The first digital platform of its kind.
What You’ll Find Here
Real Stories: This isn’t just a clinical resource or a list of symptoms. It’s a heartfelt collection of narratives from real people, shared through my lens as both a journalist and someone living with Parkinson’s.
Connection and Comfort: Here, you will discover stories that touch our hearts—tales that teach, comfort, and remind us that we are never alone on this journey.
Expert Insights: Alongside these personal stories, you will find valuable insights from experts and practical tools to help navigate daily life with Parkinson’s.
Our Mission
Our mission is to foster a compassionate and supportive community where we can walk alongside each other through the ups and downs of living with Parkinson’s—especially during those 360+ days we spend away from our doctors.
Because this is real. And we’re in it together.
Inspiring Stories
Real, raw, and hopeful stories from people living with Parkinson’s—shared to connect, uplift, and inspire.
Streaming Information
Catch live streaming events from Parkinson’s organizations and businesses—packed with timely, inspiring insights!
Helpful Resources
Check out the latest information from our partners, and the products and services designed to make life easier.
Share Your Story
This is your space to be heard—real stories, told your way, to comfort, strengthen, and give hope.
This is Parkinson’s Newsletter
We’d love to keep you informed and connect you with resources that may help.
Whether you’re living with Parkinson’s, caring for someone who is, or working on the frontlines of treatment and research—you belong here.
This is a space to feel seen, to learn from others walking a similar path, and even to share your own journey. Because your story matters—and it could be the lifeline someone else is searching for.
This is Parkinson’s. It’s personal. It’s powerful. And together, we’re stronger.
It Matters to Lisa…
Watch as Lisa shares her journey with Parkinson’s—from the moment of diagnosis to what daily life looks like now. Lisa opens up about the power of storytelling, the importance of connection, and her mission to create a stronger, more supportive Parkinson’s community through open communication and shared experience.
Lisa Volenec and Bob Sullivan bring over thirty years of collaboration in television news, specials and projects. Lisa worked as an on-air reporter and anchor and Bob as a senior news and station manager. Over the subsequent years, they have worked together in the same newsrooms and collaborated on numerous projects and initiatives.
Their focus on using their storytelling skills and experience has come together with the This is Parkinson’s initiative. Together they are committed to telling the stories of those with the disease, offering support by building patient communities and working with those equally committed to finding a cure.
Lisa was diagnosed with Parkinson’s in 2014, and every day since has been a mix of challenge, strength, and resilience. She continues to juggle a demanding career, the joys and chaos of family life, and the support of close friends—all while facing the ever-changing nature of the disease. Sharing her story has become a powerful outlet, and listening to others reminds her that no one walks this path alone.
Help us change how the world sees—and supports—Parkinson’s.